Dementia Researcher

In this episode of the Dementia Researcher Podcast Dr Anna Volkmer hosts a discussion exploring the complexities of wandering in dementia care.Dr Bryony Waters-Harvey & Dr Emma Hock from The University of Sheffield and Conny McGowan from The Orders of St John Care Trust discuss their research and outcomes of the NIHR funded "FREEDEM study" - Reframing 'wandering' as a meaningful activity using realist synthesis and qualitative explorationTakeawaysWandering is often a meaningful activity for residents.Individualised care plans are crucial for supporting residents.Language matters in how we perceive wandering.Positive risk-taking can enhance residents' quality of life.Hydration and nutrition are important for wandering residents.Research should focus on the positive aspects of wandering.Care staff need training to support safe wandering.Environmental factors significantly impact wandering behavior.Residents should have access to outdoor spaces.Future research should involve residents and their familiesAcces

This episode of the Dementia Researcher Podcast continues our coverage from the AD PD Conference 2026 in Copenhagen, one of the largest international meetings focused on Alzheimer’s and Parkinson’s disease.Hosted by Professor Louise Serpell, the conversation brings together Athina Grigoriou, Dr Lauren O’Neill, and Dr Sofie Let Frandsen, each sharing highlights from across the conference.The discussion spans a wide range of topics, from the biological role of alpha synuclein and mitochondrial dysfunction, through to emerging therapeutic targets and the growing importance of biomarkers. There is a strong focus on how diseases are more complex and varied than once thought, with increasing attention on stratification, personalised medicine, and early detection.Alongside the science, the episode also reflects on the importance of patient voices, collaboration across disciplines, and the value of sharing both positive and negative research findings.This is Part Two of our AD PD 2026 reflections, offering a thoughtf

This episode of the Dementia Researcher Podcast comes from the AD PD Conference 2026 in Copenhagen, bringing together global researchers to share the latest in Alzheimer’s and Parkinson’s disease research.Hosted by Professor David Cash, the episode features Grace Thompson, Dr Marieta Vassileva, and Dr Alice Carstairs, each offering their own highlights from across the conference.Rather than trying to cover everything, the conversation focuses on standout talks and emerging themes. These include advances in biomarkers, growing interest in co pathology, the role of neuroinflammation, and how new tools like AI and multiomics are changing how we understand disease.Across the discussion, the group reflects on what new findings might mean for diagnosis, treatment, and the future direction of dementia research. There is also a strong sense of optimism, with the field moving towards combination therapies and earlier intervention.This is Part One of a two part series capturing reflections from the conference.ADPD Conf

Primary progressive aphasia (PPA) is a group of language led dementias where communication difficulties appear before memory loss. Despite this, diagnosis can often take years and access to specialist support remains inconsistent.In this episode of the Dementia Researcher Podcast, Dr Annalise Rahman Filipiak speaks with Professor Jason Warren, Dr Anna Volkmer and Dr Jacqueline Kindell about the role of speech and language therapy in diagnosing and supporting people living with PPA. The discussion explores why diagnosis is often delayed, how speech and language therapists contribute to multidisciplinary assessment and care pathways, and why early referral can make a meaningful difference for patients and families.The conversation also looks at international differences in access to services, the importance of communication support across the course of the condition, and the growing global movement to improve awareness through Primary Progressive Aphasia Awareness Day.PPA Awareness Day 2026 - speechtherapyppa.c

In this episode, Professor Louise Serpell is joined by 2026 Rainwater Prize winners Professor Dennis Dickson, Professor Melissa Murray and Dr Marc Busche.They talk about their work and the science that led to them earning this much deserved award, reflecting on decades of research into tau and its role in neurodegenerative disease. The conversation explores how tau functions in the healthy brain, how it becomes harmful in conditions such as Alzheimer’s disease and progressive supranuclear palsy, and why certain brain regions are especially vulnerable.The discussion covers different forms of tau, including soluble species that may disrupt how neurons fire before visible tangles appear. Brain banking, imaging and fluid biomarkers are highlighted as key tools for understanding disease differences and improving diagnosis. The importance of rare MAPT mutations and what they can teach us about future treatments is also explored.Alongside the science, there are thoughtful reflections on mentorship, risk taking and t

In this episode of the Dementia Research Podcast, host Dr Gemma Lace is joined by guests, Dr Eric Hill from Loughborough University, Kalliopi Mavromati from University of Glasgow, Natalie Wickett from Simon Fraser University and Dr Kate Harris from Newcastle University.Together they discuss the intersection of ADHD and research, exploring personal experiences, misconceptions, and coping strategies. The conversation highlights the unique challenges faced by researchers with ADHD, the importance of understanding and empathy in academic settings, and the various ways individuals navigate their symptoms. The discussion also touches on the role of medication and the need for tailored approaches to support neurodiverse individuals in academia.Key takeawaysADHD is often misunderstood and is much more than visible hyperactivity.People with ADHD do not lack attention, but can struggle to direct it consistently.Hyperfocus can lead to intense productivity, followed by emotional or physical crashes.Academic culture, with

In this episode of the Dementia Researcher podcast, host Adam Smith chats with with Professor Paul Freemont and researcher Tom Adam from the UK Dementia Research Institute at Imperial College London to discuss the critical issue of urinary tract infections (UTIs) in individuals living with dementia.The conversation highlights the complexities of diagnosing UTIs in people living with dementia, where communication barriers and atypical presentations often lead to misdiagnosis and unnecessary hospitalisations. The guests emphasise the urgent need for improved detection methods, as UTIs can exacerbate cognitive decline and lead to severe health complications. They talk about their work to develop and introduce an innovative novel point-of-care diagnostic device designed specifically for dementia patients, which aims to facilitate early detection of UTIs in a home and care home setting, thereby reducing the reliance on traditional symptom reporting and hospital visits.Follow us on social media:https://www.instagra

In this episode of the Dementia Researcher Podcast, we focus on Lewy body dementia and why it remains one of the most misunderstood and frequently misdiagnosed forms of dementia.Released ahead of Lewy Body Dementia Day on 28 January, the conversation explores what Lewy body dementia is, how it sits between existing diagnostic categories, and why it often takes years for people to receive the right diagnosis.Host Dr Sam Moxon is joined by three researchers working on Lewy body dementia from very different angles. Dr Ece Bayram, Assistant Research Professor at the University of Colorado Anschutz, whose work explores differences in risk, progression and diagnosis across sex, gender, ethnicity and race. Dr Joe Kane, Consultant Psychiatrist and Clinical Lecturer, who combines clinical care with research into diagnosis, service delivery and clinical trials. Dr David Koss, Lecturer and Group Lead at the University of Dundee, studying the cellular and molecular mechanisms underlying Lewy body dementiaTogether, they u

This episode shares highlights from the UK Dementia Research Institute (UKDRI) Connectome Conference. Host Dr Anna Mallach is joined by Dr Dayne Beccano Kelly, Dr Beth Eyre, and Tom Adam to reflect on talks, posters, and discussions that stood out.The conversation covers lived experience sessions, keynote talks, early career presentations, and how informal conversations and parallel sessions shaped ideas and potential collaborations. The episode offers a snapshot of the breadth of work presented across the institute and the importance of connecting people as well as science.Find out more about the UKDRI:https://www.ukdri.ac.uk/Watch our YouTube Shorts Series, with conference attendees presenting their posters in under 3 minutes: https://www.youtube.com/playlist?list=PLeUI1GHB4EvRFJl8tRC-wq5RxkDKF9twUFollow us on social media:https://www.instagram.com/dementia_researcher/ https://www.facebook.com/Dementia.Researcher/https://www.twitter.com/demrescommunityhttps://www.linkedin.com/company/dementia-researcher htt

This festive special flips the script on polished papers and perfect protocols. Dr Fiona McLean is joined by Dr Ian Harrison, Dr Soraya Meftah, and Dr Kate Harris to share the research moments that did not go to plan but taught them far more than success ever could. From ELISAs gone rogue and antibodies that refuse to behave, to admin systems that quietly derail months of planning, this episode is a reminder that real research is messy, unpredictable, and occasionally hilarious. The conversation moves easily between lab disasters, student supervision realities, near misses with fire, and the emotional rollercoaster of academic life. It is light hearted, reassuring, and (hopefully) relatable. A permission slip to laugh, reflect, and remember that being wrong is often part of doing good science. Merry Christmas from all of us! -- Top takeaways - Most experiments do not fail, they redirect - Unexpected results often open better research questions - Rushing protocols almost always backfires - Admin failures can b

This festive charity debate asks a question nobody saw coming but everyone had an opinion on. Would Santa Claus make a good principal investigator? Recorded live in the Dementia Researcher Community, this Christmas special brings humour, sharp thinking, and real reflections on leadership, research culture, ethics, and academia. -- The debate is hosted by Adam Smith and Dr Anna Volkmer. Speaking for the motion is Rebecca Williams, PhD researcher exploring FTD and apathy. Speaking against the motion is Dr Connor Richardson, Research Fellow working in data science, epidemiology, and machine learning in dementia research. Through opening statements, rebuttals, and audience questions, the discussion ranges from logistics and mentorship to ethics, transparency, wellbeing, and what good leadership really looks like in research. While lighthearted on the surface, the debate reveals some very familiar academic tensions beneath the tinsel. Vote now:

In this episode of the Dementia Researcher podcast we look at how dementia clinical trials reach far beyond medicines. Host Dr Annalise Rahman Filipiak speaks with Dr Elizabeth Rhodus, Dr Inga Antonsdottir, and Dr Elisa França Resende about entering the field, working with behavioural and community based interventions, and learning the skills needed to deliver rigorous, reproducible studies that still respect the individual needs of participants. The guests discuss their routes into trials, what surprised them, what they wish they had known earlier, and how mentorship and collaboration shaped their progress. They touch on trial design, regulatory processes, cultural considerations, and the value of early career networks that support researchers across different countries. -- Topics covered

In this episode of the Dementia Researcher - Xxplored Women’s Brain Health podcast, host Dr Laura Stankeviciute speaks with Professor Claudia Barth from Charite University and Dr Gillian Coughlan from Harvard Medical School to examine the midlife transition, menopause and its significance for women’s brain health. Together they outline what the menopause truly involves across the early, late, and post stages, and explain how hormonal change affects brain structure, energy use, mood, and cognition. They also explore why this period may coincide with greater vulnerability to later Alzheimer’s disease and discuss the role of early or surgical menopause, symptom severity, and gaps in existing research cohorts. The episode highlights the need for richer reproductive data, real time biomarker studies, and closer collaboration with digital health tools to better capture women’s lived experiences. It reflects a growing wave of research and public interest aimed at improving understanding, support, and evidence bas

In this episode, host Dr Anna Volkmer is joined by Dr Alys Griffiths, Sophie Jeffery, and Esther Whittlesea Reed to explore a two-year Alzheimer’s Society project testing #psychotherapy for people with dementia. Together, they discuss the importance of therapy in #dementia care, the barriers to access, the development of new therapist competencies, and the lived experience of psychotherapy from both clinical and personal perspectives. -- Takeaways

In this episode of the Dementia Researcher Podcast, host Dr Anna Volkmer, Associate Professor at UCL and Speech and Language Therapist explores the experiences of young carers in families affected by dementia, the challenges they face, the support they receive, and what more could and should be done. Anna is joined by Dr Patricia Masterson Algar a Lecturer at Bangor University, leading new research funded by Health and Care Research Wales to develop a peer support programme for young carers. Hannah Gardner a Consultant Admiral Nurse for Children and Young People at Dementia UK, advocating nationally for better awareness and support and Gareth and Euan Heslop, father and son who share their lived experience of caring for a wife and mother with young-onset dementia. Together they discuss the often overlooked impact of dementia on children and teenagers, the stigma and isolation young carers face, and how families, schools, and professionals can work together to provide better understanding and support. -- In

In our first episode of the XXplored Women's Brain Health podcast, our resident expert and host Dr Laura Stankeviciute from University of Gothenburg engages with leading neuroscientists Professor Liisa Galea from University of Toronto and Dr Maria Teresa Ferretti from Karolinska Institutet to explore the critical intersection of sex, gender, and brain health. Together our guests discuss their personal journeys into neuroscience, the biological differences in brain health, the impact of hormonal changes, and the vulnerability of women to Alzheimer's disease. The conversation also addresses the barriers to inclusion in clinical research, the implications of neurosexism, and the importance of precision medicine. The episode emphasises the need for early diagnosis and the societal stigma surrounding women's health issues, while advocating for a more inclusive and evidence-based approach to brain health research and treatment. This first show sets the scene for what will be an ongoing series of shows, delivered

In this episode of the Dementia Researcher Podcast, host Adam Smith (Programme Director at UCL) is joined by Dr Sam Moxon, Dr Lindsey Sinclair, and Dr Ece Bayram to explore the art of delivering lightning talks. Together they share practical advice on structuring short presentations, handling nerves, designing impactful slides, and engaging diverse audiences. With personal anecdotes and strategies from their own conference experiences, this discussion offers valuable guidance for early career researchers preparing to present their work with clarity and confidence. -- Takeaways • Lightning talks are concise presentations, usually under five minutes. • Strong preparation is essential for success. • An engaging delivery leaves a lasting impression. • Slides should support the message, not overwhelm it. • Rehearse to the clock to stay on time. • Personal touches help connect with the audience. • Focus on one key message instead of overloading with detail. • Use clear, accessible language throughout. • Treat the

In this episode of the Dementia Researcher podcast, host Adam Smith discusses the upcoming AAIC Neuroscience Next Conference with guests Tricia Nicholson, Dr Amanda Heslgrave, and Kalli Mavromati. They explore the unique hybrid format of the conference, which combines in-person and virtual elements, making it accessible to a global audience. The conversation highlights the focus on biomarkers in dementia research, the importance of early career researchers, and the abstract submission process, providing valuable tips for potential presenters. The episode emphasizes the conference's goal of fostering collaboration and sharing knowledge within the dementia research community. Register to attend: https://www.alz.org/neurosciencenext/overview.asp -- Takeaways: • The AAIC Neuroscience Next Conference is free and accessible to all. Taking place across 6 countries and online from the 23rd to 26th February 2026. • The UK hub will focus on biomarker advancements in dementia diagnosis, with a full in-person confere

In this episode we welcome three GBHI Fellows: guest host and filmmaker Michelle Memran, documentary photographer Alex Kornhuber, and social sciences academic Dr Sonata Mačiulskytė. Together they explore the ways in which caregiving, creativity, and change come together in the context of dementia. Drawing on their experiences of supporting loved ones with dementia, they reflect on how these personal journeys have influenced their professional work and shaped their understanding of the disease. The discussion touches on the early signs of dementia, the transformation of relationships through caregiving, and the importance of early diagnosis. The conversation also considers the significance of documenting caregiving experiences and the need to reshape the narrative around dementia. By sharing stories and creative perspectives, the guests highlight how shifting this narrative can foster greater awareness, empathy, and understanding. -- Takeaways • Caregiving is a deeply personal journey that shapes profession

Grant rejection is part of every researcher’s journey — and it never stops, no matter your career stage. In this episode of the Dementia Researcher Podcast, host Dr Fiona McLean (Alzheimer’s Research UK Fellow at the University of Dundee, studying links between metabolic syndrome, learning and memory) speaks with: -- Dr Sarah Marzi — Senior Lecturer at King’s College London and UK DRI group leader, researching the epigenome in neurodegenerative diseases. Dr Kate Harris — Research Fellow at Newcastle University, soon to be Senior Lecturer, specialising in drug discovery for neurodegenerative diseases. Dr Dayne Beccano-Kelly — UK DRI Future Leader Fellow and group leader at Cardiff University, focusing on synaptic dysfunction in Parkinson’s disease. Together they share personal experiences of failed applications, from crushing first rejections to the resilience that comes with time, blending honest stories with practical strategies. -- In this episode: