Informações:
Sinopse
The official MitoAction podcast is a monthly call often with physicians who are experts on mitochondrial disease. Mitochondrial disease occurs when the mitochondria(the powerhouse of a cell) are unable to effectively generate energy during food metabolism. Approximately one in 4000 adults and children have mitochondrial disease ("Mito"). MitoAction is a non-profit organization dedicated to support, education and advocacy for the mitochondrial disease patient community.
Episódios
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Teen interview with Olivia
23/10/2008 Duração: 18minInterview with 14 year old teen Olivia, living with mitochondrial disease
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Teen interview with Reed
16/10/2008 Duração: 09minInterview with Reed, 13 year old teen living with mitochondrial disease
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Teen interview with Morgan
16/10/2008 Duração: 29minInterview with Morgan, 15 year old teen living with mitochondrial disease
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Teen interview with Donovan
16/10/2008 Duração: 23minInterview with Donovan, 17 year old teen living with mitochondrial disease
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Teen interview with Kristin
16/10/2008 Duração: 14minInterview with Kristin, 18 year old teen living with mitochondrial disease
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Interview with Annalise
16/10/2008 Duração: 18minInterview with Annalise, 23 year old living with mitochondrial disease
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October MITO Meeting: Tummy Troubles
03/10/2008 Duração: 01h18minDr. Alex Flores speaks about gastrointestinal issues for mitochondrial disease patients.
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Mitochondria: The BIG Picture
12/09/2008 Duração: 17minInterview with Dr. Christoph Westphal, Sirtris Pharma
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Meeting: CoQ10 and Creatine, August 1 2008
08/09/2008 Duração: 01h14minThis month MitoAction welcomed Dr. Fran Kendall of Emory University's Department of Human Genetics mitochondrial program to discuss the dosing debate around CoQ10 and creatine.
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Drug Trial Begins Targeting Mitochondrial Diseases
19/07/2008 Duração: 22minExclusive Interview with Dr. Guy Miller, CEO of Edison Pharma. On July 15, 2008 Edison Pharma and partner Penwest Pharmaceuticals announced that A0001, an "improved" variant of Coenzyme Q10 (CoQ10), has entered Phase 1 clinical development with healthy volunteers. Edison predicts trials in patients with inherited mitochondrial disease will begin in 2009.
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Meeting: Multiple Specialists June 6th 2008
01/06/2008 Duração: 01h22minMitoAction meeting discussing multiple specialists
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Meeting: Heat Intolerance May 2nd 2008
02/05/2008 Duração: 01h21minMitoAction.org meeting discussing heat intolerance.
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Meeting: Dysautonomia April 4th 2008
04/04/2008 Duração: 01h24minMitoAction.org meeting discussing Dysautonomia.
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Meeting: The Mito Cocktail March 7th 2008
07/03/2008 Duração: 01h39minMitoAction discusses the mito cocktail.
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Meeting: Disability Advocacy Febrary 1st 2008
01/02/2008 Duração: 01h38minMitoaction meeting about disability advocacy with special guiest Valerie Powers Smith, Attorney-at-law
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Meeting: Committee Chairs January 28th 2008
28/01/2008 Duração: 01h17minMitoAction meeting with the committee chairs.
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Meeting: Exercise Intolerance January 4th 2008
04/01/2008 Duração: 01h23minMitoaction teleconference discussing exercise intolerance with mito.
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Meeting: Holiday Stress December 7, 2007
07/12/2007 Duração: 110h59minMitoaction discussion dealing with holiday stress and the importance of watching fluid intake.
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Interview with Cristy Balcells September 30th 2007
30/09/2007 Duração: 06minInterview with the Director of MitoAction.org; Cristy Balcells.