Informações:
Sinopse
The official MitoAction podcast is a monthly call often with physicians who are experts on mitochondrial disease. Mitochondrial disease occurs when the mitochondria(the powerhouse of a cell) are unable to effectively generate energy during food metabolism. Approximately one in 4000 adults and children have mitochondrial disease ("Mito"). MitoAction is a non-profit organization dedicated to support, education and advocacy for the mitochondrial disease patient community.
Episódios
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Nutrition for Mitochondrial Disease Patients
07/05/2010 Duração: 50minJoin us this month to learn more about the challenges facing kids and adults with Mito when it comes to nutrition. What are the goals for Mito patients, and how are they different from nutrition goals for the typical population?
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Becoming a great advocate: advice for complex patients and families, with Mark Korson MD and Maggie Orr RN
05/04/2010 Duração: 54minBecoming a great advocate: advice for complex patients and families, with Mark Korson MD and Maggie Orr RN
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Question and Answers with compounding pharmacists
05/03/2010 Duração: 01h01minQ&A with compounding pharmacists about vitamins and supplements for Mito patients.
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Dr. Marcus Favero speaks on Psychiatric Disorders, Meds and Mito
08/02/2010 Duração: 01h04minDr. Marcus Favero speaking on Psychiatric Disorders, Medications & Mitochondrial Disease
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Update on Mito Treatment Approaches
09/11/2009 Duração: 44minDr. Anselm is a member of MitoAction's medical advisory committee and practices in Child Neurology at Children's Hospital Boston. Her research is focused on clinical presentation of children with mitochondrial disorders and their response to therapy.
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Coping with Mitochondrial Disease
05/10/2009 Duração: 01h05minMitoAction welcomes Carole Slipowitz PhD and Maggie Orr RN M.Ed this month to discuss the challenges of dealing with a diagnosis of mitochondrial disease. Any chronic illness can be overwhelming - for a child, a family, or an adult with the condition. However, due to the unpredictability, complexity of symptoms, and uncertain prognosis, a diagnosis of mitochondrial disease is especially stressful...and exhausting.
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Munchausens by Proxy accusations in Children with Mitochondrial Disease
08/09/2009 Duração: 54minThis topic is dramatically important to the parents of children with complex gastrointestinal presentations of mitochondrial disease. MitoAction addresses this topic today in response to the increasing number of accusations of child abuse and Munchausen by proxy that have been placed upon many parents of children struggling from the devastating symptoms of mitochondrial disease.
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To Work or Not to Work
10/08/2009 Duração: 01h12minMITO Meeting Aug 7, 2009 with Lee Jurman from Personal Disability Consulting on the topic: "To work or not to work: Tough choices for adult Mito patients"
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Medical Foods for Mito
10/07/2009 Duração: 54minSolace Nutrition and Medical Foods joins MitoAction July 10th for a toll-free teleconference to discuss medical foods, how they interact with electron transport chains and more.
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Home Nutrition Support with guest Deb Pfister from NutriThrive
08/06/2009 Duração: 59minJoin us as expert Deb Pfister from NutriThrive discusses g-tubes, j-tubes, TPN and the ins and outs of parenteral and enteral nutrition for adults and children who need alternatives to food for nutrition and hydration.
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Drug Toxicity and Mitochondria
01/05/2009 Duração: 01h07minMitoAction is excited to welcome Dr. James Dykens, Director of Investigative Cellular Toxicity at Pfizer Drug Safety Research & Development and author of the 2008 book "Drug Induced Mitochondrial Dysfunction".
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Palliative care and hospice
03/04/2009 Duração: 47minPalliative care and hospice: Focus on quality of life with guest speaker Dr. Patricia O'Malley from Massachusetts General Hospital
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Special needs planning workshop with Jack Raycroft
09/03/2009 Duração: 01h01minMitoAction welcomes Jack Raycroft for a discussion on special needs planning. MitoAction meeting March 6 2009.
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Mitoaction Interview with Jamie Emory
25/02/2009 Duração: 19minA MitoAction interview with Jamie Emory.
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Autism and Mitochondrial Disease
06/02/2009 Duração: 127h24minAutism and Mitochondrial Disease, Feb 6 2009 with guest Dr. David Holtzman
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"Ideas from an occupational therapist" with speaker Susan Orloff, OTR/L
09/01/2009 Duração: 53minJoin MitoAction with guest speaker Susan Orloff OTR/L to discuss ideas to help with the energy/sensory connection for children and adults with mitochondrial disease.
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Genetic inheritance patterns in Mito with guest speaker Katherine Sims
05/12/2008 Duração: 01h28minGenetic inheritance patterns in mitochondrial disease, guest speaker Dr. Katherine Sims of Massachusetts General Hospital An overview of ways that mitochondrial disorders may be inherited, designed to educate patients, families, and community healthcare providers.
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Teen interview with Harrison
23/10/2008 Duração: 24minInterview with 19 year old teen Harrison living with mitochondrial disease