Appearance Matters: The Podcast!

Welcome back to the third episode of our summer shorts series! Over the summer, the CAR podcast team are brining you 10 bite-sized episodes on a recently published paper from different members of the team at the Centre for Appearance Research. In this summer short, Abbi speaks with Bruna Costa - Research Fellow at CAR (and co-host of Appearance Matters!) - about her recently published paper entitled Isolation, Uncertainty and Treatment Delays: Parents' Experiences of Having a Baby with Cleft Lip/Palate During the Covid-19 Pandemic Link to the paper: https://pubmed.ncbi.nlm.nih.gov/34841909/ Link to the other paper mentioned: https://www.semanticscholar.org/paper/The-Impact-of-the-Covid-19-Pandemic-on-Cleft-Lip-in-McWilliams-Costa/8abfe4c7dbf4e2b5e1f10a1e7a6bc6dab6d2014e Cover Image: Photograph by Yuri Arcurs Summer shorts series developed by Nadia Craddock Episode produced by Abbi Mathews

Welcome back for the second episode of our summer shorts series! Over the summer, the CAR podcast team are brining you 10 bite-sized episodes on a recently published paper from different members of the team at the Centre for Appearance Research. In this summer short, Maia speaks with Beth Herring - a PhD student at CAR - about her recently published paper entitled Exploring the experiences and psychosocial support needs of informal carers of men with breast cancer: a qualitative study. Link to the paper: https://link.springer.com/article/10.1007/s00520-022-07095-2 To participate in the study about health and support professionals experiences please follow the links below: Healthcare professionals: https://go.uwe.ac.uk/breastcancer3 Charity workers: https://go.uwe.ac.uk/breastcancer4 Cover Image: Photograph by David Jay Photography Summer shorts series developed by Nadia Craddock Episode produced by Maia Thornton

Introducing our summer shorts series! Over the summer, the CAR podcast team are bringing you 10 bite-sized episodes on a recently published paper from different members of the team at the Centre for Appearance Research. In this inaugural summer short, Nadia speaks with fellow co-host Dr Maia Thornton - a Research Fellow at CAR to learn more about Maia's recently published the paper titled “I listen to my body now”: A qualitative exploration of positive body image in breast cancer survivors. Link to the paper: https://www.tandfonline.com/doi/full/10.1080/08870446.2021.1956494 Cover Image: Photograph by Michelle Leman Summer shorts series developed by Nadia Craddock Episode produced by Nadia Craddock

This month, Bruna and Nadia consider what it means to be a man with a visible difference. On the episode, Bruna first speaks with Fabio Zucchelli – a researcher at the Centre for Appearance Research who has recently carried out some work in this area. Then, Bruna speaks with Dola Akinnibosun – a wellbeing practitioner at Changing Faces. Changing Faces is a UK charity, dedicated to supporting those affected by visible differences. As part of her role, Dola delivers 1-1 support, and has experience of supporting men with visible difference. Finally, Bruna speaks with Ryan Foan – a Changing Faces volunteer campaigner, with lived-experience of visible differences. Interview Timestamps: Fabio: 02.02 Dola: 24.21 Ryan: 44.40 To find out more about the Centre for Appearance Research, follow us: • On Twitter: twitter.com/CAR_UWE • On Instagram: www.instagram.com/car_uwe/ • On Facebook: www.facebook.com/AppearanceResearch To read more about, and sign up to, the ongoing research project that Fabio discussed (about

Having light-coloured skin has been a key feature of societal appearance ideals for women in many parts of the globe, including Indonesia - the world's fourth most populated country. On this episode, we hear from CAR-collaborator Dr Ayu Saraswati, Associate Professor of Women, Gender and Sexuality Studies at the University of Hawaii to learn more about the light skin appearance ideal in Indonesia. We discover that the preference for lighter skin predates European(specifically Dutch) colonialism and that, lighter skin is not always considered better if the racialized group is not also positioned as desirable. Ayu also explains why the promotion of skin lightening products and the promotion of skin tanning products are not two sides of the same coin, though both are rooted anti-blackness. To find out more about CAR, follow us: On Twitter: twitter.com/CAR_UWE On Instagram: www.instagram.com/car_uwe/ On Facebook: www.facebook.com/AppearanceResearch To read more about the work CAR is doing in Indonesia: ht

This month, we welcome a new podcast co-host – Abbi Mathews. Abbi is a Research Associate at CAR, with experience working in the area of CMN. CMN stands for Congenital Melanocytic Naevi, and is characterised by birthmarks which can in some cases cover large areas of the body. Bruna and Abbi ask: what’s it like to be a young person with CMN? To help them answer this question, they’re firstly joined by Ella Guest, Jodi Whitehouse, Hannah Cree, and Katy Jackson. Ella is a Research Fellow from the Centre for Appearance Research (CAR) who has been exploring the experiences of young people with CMN. Jodi, Hannah and Katy join us from Caring Matters Now – a UK charity supporting those affected by CMN. Jodi is the founder and CEO, and has personal experience of CMN. Hannah is the support pathway co-ordinator, and has a son who was born with CMN. Finally, Katy, who also has CMN, is the young adults support contact. Last, we hear from three young people with CMN - Becky, Scarlett and Dan – who share with us their per

This month, the whole podcast team join together (for Jade’s final farewell!) to discuss the important topic of the impact social media has had during COVID-19 on teens. They are joined by Sabrina Meechem, a PhD researcher (and fellow zoo member) at the Centre for Appearance Research, who has been researching how social networking sites influence adolescent body image for her PhD. ~Timestamp~ Sabrina Meechem - 8.25 To find out more about the Centre for Appearance Research, follow us: • On Twitter: twitter.com/CAR_UWE • On Instagram: www.instagram.com/car_uwe/ • On Facebook: www.facebook.com/AppearanceResearch Please share, subscribe, rate and review. It really does mean a lot. Thank you! Jade, Nadia and Bruna x Music by Sian Evans & John Landau: toplinefilm.com Episode developed & produced by Jade Parnell

This month, Bruna and Jade discuss the topic of craniosynostosis, with a focus on the experiences of parents of children with the condition. On the episode, Bruna and Jade are joined by several guests: Nicola Stock, Associate Professor at the Centre for Appearance Research; Karen Wilkinson-Bell, Director of Headlines Craniofacial support; and Lucy, Kris and Michelle, parents of children with craniosynostosis. To find out more about the Centre for Appearance Research, follow us: • On Twitter: twitter.com/CAR_UWE • On Instagram: www.instagram.com/car_uwe/ • On Facebook: www.facebook.com/AppearanceResearch To find out more about the work of Headlines Craniofacial Support, and to access the parent booklet that was referenced in this episode, visit: www.headlines.org.uk Please share, subscribe, rate and review. It really does mean a lot. Thank you! B & J x Music by Sian Evans & John Landau: toplinefilm.com Cover photo from Headlines Craniofacial Support (with special thanks to Monty, Lucy and Kris). Ep

Listen in to learn about Topity - a chatbot designed to improve body image among Brazilian adolescents. ~Timestamps~ Dr Juliana Meireles & Professor Ana Carolina Soares Amaral - 5.22 Gabriela Mora (UNICEF Brazil) - 18.55 Lucila Suarez Battan (Talk 2 U) - 26.54 Dr Emily Matheson - 43.22 Topity Protocol Paper: https://bit.ly/3GBszwO Let us know what you think: https://twitter.com/car_UWE    To find out more about CAR: www.uwe.ac.uk/car    Episode developed and produced by Dr Nadia Craddock. If you found this episode useful, please rate us on Apple Podcasts – it really DOES help.

65: Appearance Matters 9 Keynote: Professor Esther Rothblum by The Centre for Appearance Research

This month, Bruna and Jade discuss the topic of facial palsy. The episode features several guests - Charles Nduka (founder of the charity Facial Palsy UK (FPUK) and plastic and reconstructive surgeon), Karen Johnson (deputy CEO of FP UK), Elizabeth Robinson (patient advocate from Australia), Matthew Hotton (Clinical Psychologist), Claire Hamlet (Health Psychologist), and Kathleen Bogart (Associate Professor at Oregon State University) – all coming together to provide important insights into this topic. We hope you'll enjoy listening to this episode! To find out more about the Centre for Appearance Research, follow us on: • Twitter: twitter.com/CAR_UWE • Instagram: www.instagram.com/car_uwe/ • Facebook: www.facebook.com/AppearanceResearch To find out more about the work of FPUK, visit: https://www.facialpalsy.org.uk/ To read the guidelines developed for mental health professionals about how to work alongside physical health practitioners to assess and meet the psychological needs of people with facial

Ramadan - one of the five pillars of Islam - is the ninth month of the Islamic calendar and is characterised by a month of fasting, prayer, reflection, and community. The fasting (and feasting) can be triggering for people struggling with disordered eating and eating disorders for obvious reasons. In contrast, the focus on spirituality and community can be healing. CAR's Farheen Hasan and eating disorder advocate and founder of Islam and Eating Disorders Maha Khan tell us more.

Tune in to hear to Appearance Matters 9 Conference Panel Discussion: ‘is a body confident society possible amidst the ‘ob*sity epidemic’? With esteemed panellists: Stuart Flint - Associate Professor of the Psychology of Obesity at the University of Leeds and Director of the charity Obesity UK. https://medicinehealth.leeds.ac.uk/psychology/staff/4782/dr-stuart-w-flint Sarah Le Brocq - public speaker and strategic council member of the All-Party Parliamentary Group on obesity. https://slebrocq.com Marquisele Mercedes - fat liberationist writer, creator, and Presidential Fellow at the Brown University School of Public Health https://www.marquiselemercedes.com/about Nia Patterson - eating disorder recovery and mental health advocate. https://www.instagram.com/thefriendineverwanted/ Esther Rothblum - Professor and Chair of Women’s Studies at San Diego State University. https://womensstudies.sdsu.edu/people/rothblum Moderator: Caryn Franklin – fashion commentator and former editor. https://franklinonfashion.com/

This month, Bruna and Nadia discuss the issue of medical tattooing. Guests Nicola Stock (Senior Research Fellow at the Centre for Appearance Research), Amy Johnson (Operations Manager from the charity Alopecia UK), and Rae Denman (a medical tattooist), all come together to provide various perspectives on the matter. To find out more about the Centre for Appearance Research, follow us:  On Twitter: twitter.com/CAR_UWE  On Instagram: www.instagram.com/car_uwe/  On Facebook: www.facebook.com/AppearanceResearch  To find out more about Rae and her medical tattooing work: makeup@raedenman.co.uk www.raedenman.co.uk To find out more about the work of Alopecia UK: www.alopecia.org.uk Information from Alopecia UK about medical tattooing: https://www.alopecia.org.uk/permanent-make-up To read the (freely-available) published research article that was discussed during the episode: https://www.tandfonline.com/doi/full/10.1080/13548506.2021.1883688?scroll=top&needAccess=true You can also read a blog p

What legal and non-legal changes can we introduce to protect people with a visible difference(i.e., any condition or injury which alters appearance) from discrimination in society? Nadia speaks with Dr Hannah Saunders, Director of Studies in Law at Sidney Sussex College, Cambridge about her work on appearance equality and the law and then we get an exclusive from Jade on the resource she's created for primary school teachers to help promote acceptance of appearance diversity. Link to the Law Centre's Network website where you can search to find a law centre near you for independent legal advice on any possible equality issues relating to visible difference (including issues related to perceived visible difference or by association with someone else): www.lawcentres.org.uk Jade's free resource for schools: https://faceequalityinternational.org/wp-content/uploads/2021/05/Teachers-Support-Guide-FINAL-all-portrait.pdf Jade’s PhD Topic Episode: https://soundcloud.com/appearance-matters/51-back-to-school-pr

The experience of parenting a child with a visible difference is complex and so, with the help of Tina Rycroft (Mother of a child with Microtia) and Maia Thornton (PhD researcher at CAR), Jade and Bruna unpack this topic area. Find out more about the parent support materials being developed at CAR: https://bit.ly/2RM3oDC Resources on Microtia UK website: http://www.microtiauk.org/information/ To find out more about the Centre for Appearance Research, follow us: • On Twitter: twitter.com/CAR_UWE • On Instagram: www.instagram.com/car_uwe/ • On Facebook: www.facebook.com/AppearanceResearch Music by Sian Evans & John Landau: toplinefilm.com Cover photo provided by Tina Rycroft Episode developed & produced by Jade Parnell

This month, Bruna and Jade discuss the expansion of support for adults with a cleft lip and/or palate. Guests Nicola Stock (Senior Research Fellow at the Centre for Appearance Research) and Kenny Ardouin (Adult Services Manager at the Cleft Lip and Palate Association (CLAPA)), share their important recent research and work in this area. To find out more about the Centre for Appearance Research, follow us: • On Twitter: twitter.com/CAR_UWE • On Instagram: www.instagram.com/car_uwe/ • On Facebook: www.facebook.com/AppearanceResearch To find out more about the work of CLAPA, visit: • CLAPA’s website: https://www.clapa.com/ • CLAPA’s Adult Voices Facebook group: https://www.facebook.com/groups/CLAPAAdults/ • CLAPA’s Cleft Talk podcast: https://soundcloud.com/clefttalk To find out more about Cleft Lip and Palate Awareness Week 2021 (8-16 May), please visit: https://www.clapa.com/awareness-week/ Please share, subscribe, rate and review. It really does mean a lot. Thank you! B & J :) Music by Sian Evans & J

Lockdown has been particularly challenging for people living with eating disorders. Nadia and Jade find out why with eating disorder expert, Helen West RD before hearing more about people's experiences of eating disorder recovery with CAR's Gina Pegram and Leah Newton - an eating disorder campaigner. For more on Helen: https://embodiedeating.co.uk For more on Leah: https://workedout.co.uk Eating Disorder Resources: https://www.beateatingdisorders.org.uk https://butterfly.org.au https://www.nationaleatingdisorders.org Let us know what you think : https://twitter.com/car_UWE    To find out more about CAR: www.uwe.ac.uk/car    If you found this episode useful, please rate us on Apple Podcasts – it really DOES help.    Thanks, N & J x Cute photos of kittens by The Lucky Neko via Unsplash

Nearly a year since the first lockdown, Jade and Bruna discuss the experiences of those with a visible difference during the COVID-19 pandemic and subsequent lockdowns. Guests Diana Harcourt, Pippa Tollow and Ella Guest from CAR, as well as Catherine Deakin from Changing Faces share important recent research on this topic. The work described by members of CAR was supported and funded by the Vocational Training Charitable Trust (VTCT) Foundation. http://www.vtctfoundation.org.uk Changing Faces sources of support link: https://www.changingfaces.org.uk/adviceandsupport To find out more about the Centre for Appearance Research, follow us: On Twitter: twitter.com/CAR_UWE On Instagram: www.instagram.com/car_uwe/ On Facebook: www.facebook.com/AppearanceResearch Please share, subscribe, rate and review. It really does mean a lot. Thank you! J & B x Music by Sian Evans & John Landau: toplinefilm.com Cover photo by Ivan Samkov from Pexels Episode developed & produced by Jade Parnell

Nadia and Jade speak with Dr Issy Bray (​Associate Head of Department for Research and Knowledge Exchange - Department of Health and Social Sciences, UWE Bristol) and Dr Helena Lewis-Smith (Senior Research Fellow at the Centre for Appearance Research, UWE Bristol) about body image from a public health perspective. Papers discussed by Issy, Helena, Amy and Anna Bornioli, A., Lewis-Smith, H., Smith, A., Slater, A., & Bray, I. (2019). Adolescent body dissatisfaction and disordered eating: Predictors of later risky health behaviours. Social Science & Medicine, 238, 112458. Bornioli, A., Lewis-Smith, H., Slater, A., & Bray, I. (2020). Body dissatisfaction predicts the onset of depression among adolescent females and males: a prospective study. J Epidemiol Community Health. Lewis-Smith, H., Bray, I., Salmon, D., & Slater, A. (2020). Prospective Pathways to Depressive Symptoms and Disordered Eating in Adolescence: A 7-Year Longitudinal Cohort Study. Journal of Youth and Adolescence, 49(10), 2060-2074. Discussion