Inspiring Life Despite A Diagnosis

Kenai came five weeks early and was diagnosed five days after birth. Kassy and her husband Darren had no idea that he would be born with 7 Q Chromosome Deletion. Though the news was unexpected for them and their families, they love Kenai the way he is. In fact, they are happier now, and their family is more complete. What limits to put on a child with disabilities  Kenai is one of 34 babies who has been reported to have 7 Q Chromosome Deletion. This really is an unknown area for them because his condition is so rare. Each case is different, so Kenai’s parents are learning about his special traits as he grows. “Do not to use Google for answers,” said Kassy. “The online research will tell you that all the things they’ll never be able to do.” Kenai has a cleft in his soft palate, and doctors said he’d never be able to eat with his mouth. When they asked if they could put a G-tube in his stomach, Kassy said no. She wanted to know if Kenai could do it by himself first, and he has succeeded. “I don’t ever say th