Two Disabled Dudes Podcast
289 - Re-release: From Dad to Advocate to CEO
- Autor: Vários
- Narrador: Vários
- Editora: Podcast
- Duração: 0:37:42
- Mais informações
Informações:
Sinopse
In recognition of Rare Disease month we are bringing you a conversation that we first published in May 2024.In this interview, John Crowley shares how his children’s diagnosis with Pompe disease propelled him from a concerned father into the rare disease biotech world, ultimately helping develop a life-saving enzyme replacement therapy. He reflects on the journey that followed—building Amicus Therapeutics, advocating for patient-centered innovation, and witnessing his children grow into adulthood with resilience, purpose, and optimism. John is currently CEO of the Biotechnology Innovation Organization (BIO).