Special Fathers' Network Podcast

Our guest this week is Jeff Wallis, of Valparaiso, IN who is a veterinarian and father of who had a son with Hypotonia, Ataxia, Developmental Delay, and Tooth-Enamel Defects Syndrome (HADDTS) an extremely rare but serious genetic condition caused by a mutation in the CTBP1 gene.Jeff and his wife, Mindy, have married for 22 years and are the proud parents of Charles 18, who very sadly past away in May, who had Hypotonia, Ataxia, Developmental Delay, and Tooth-Enamel Defects Syndrome (HADDTS) an extremely rare but serious genetic condition caused by a mutation in the CTBP1 gene.We learn about a host of organizations that played a key role in the Wallis family and on behalf of Charles including; the HADDTS Foundation, University of Chicago Genetics, Kids Work and Jacob's Ladder.  We also learn about an epic cross country RV trip the family took with Charles during COVID to provide him with some extraordinary memories. While Charles lived a relatively short life, the Wallis family story one is about making the mo